Oman Hereditary Blood Disorder Association (OHBDA), is a privately run non-profit organization. The OHBDA was officially announced on 14 June 2009 according to the Ministerial Decree No 75/2009 with the aim of creating awareness among public on how to avoid the spread of hereditary blood disorder and to provide a wide range of services for patients and families.
The on-going initiative has been developed to recognize hereditary blood disorder patients' special needs in various environments; educational, vocational and health institutions. It initiated by forming a joint committee with the Ministry of Health where a number of subcommittees were working on improving service delivery on a number of aspects: creating educational channels of communication between patients, their families and medical specialists, as well as for public awareness, training staff on how to develop rehabilitation programs for patients designed to meet their diverse psychological needs, and screening the quality of medical service provided for blood disorder patients across country through conducting a field survey measuring capacity building, tools and medication, admission procedures and emergency protocols, state-of-the-art database system (software) that can be accessed throughout the country providing up-to-date data, transparency, facilitating policy making procedures, and providing better services to end users.
Collaborate effort is taking place between OHBDA, Sultan Qaboos University and Sultan Qaboos University Hospital to establish a consultation center for hereditary blood disorder patients.
OHBDA is closely working with the Ministry of Health to establish Day Care Centers for blood disorder patients at all hospitals country-wise. OHBDA is also working with an IT private institution to develop software that can be used to build a state-of-the-art database that would lead to a more effective and responsive public administration, as well as to promote the visibility and improve the delivery of medical public service.
Concurrently, OHBDA is working on advocacy and policy making level with the Ministry of Manpower, Oman Chamber of Commerce and Industry, and the Labor Union to improve the Labor Law and create job opportunities taking into consideration blood disorder patients' special needs. On the other hand, OHBDA is working side by side with the media, Ministry of Information and Ministry of Religious Endowments and Religious Affairs to raise the level of public awareness within society through different educational channels that target various age groups; TV, radio, press, Facebook and Twitter.
A two-month vocational training program (Training for Jobs) on a range of various fields was designed and addressed to (44) hereditary blood disorder patients. It was conducted by an Institute of Change Management and funded by Petroleum Development Oman (PDO). The graduates of this programme can now find suitable employment in the private sector.